As many of you know…I have been seeking a medical diagnosis for over a year for my lungs. If you have no clue what I am talking about…please refer back to my blog post on June 16th, 2025…where details are given of my situation.
Some of you have been asking for an update…so I thought I would share with you what we know as of today. After being seen by several different doctors, I was finally sent to IU Med to see a critical care lung specialist. Before this appointment, another CT scan was done to see how much improvement there had been in my lungs since that last scan in June. The results were not what we wanted to hear. There had been no improvement. All the medicine I had been given had done nothing.
We debated as to whether to go to IU Med or Cleveland Clinic and finally settled on IU Med because it is closer to our home. But because our God is absolutely amazing, the doctor I was given did all his residency at Cleveland Clinic. So, we got the best of both worlds from him.
He was very thorough and really studied everything that had been done for me over the past 15 months. After asking many questions, he finally gave me the diagnosis of Focal Bronchiectasis. If you research this diagnosis, you will find out that Bronchiectasis is when the walls of your bronchi, the tubes that carry air into and out of your lungs, become thickened and damaged. They can fill up with mucus and infection, making it hard to breathe. Bronchiectasis is a long-term (or chronic) disease that gets worse over time and causes permanent lung damage to the airways.
The specialist then told me that my timing for seeing him was really something, because he said up until the day before my appointment, there had never even been any treatment for this condition. But, just 24 hours before sitting in his office, a drug was approved. The medicine does not fix the permanent damage, but it is supposed to help clear out my airways, hopefully helping me to breathe much easier.
That was the good news. But life wouldn’t be life unless there was also some not-so-good news. Getting this brand-new medicine has proved to be rather difficult. My understanding is that my pulmonologist will need to apply for me to get it and then of course, my insurance will have to approve it. Current cost? $88,000.00 a year…so roughly $7,000.00 - $8,000.00 a month. So, it is imperative that my insurance covers it.
I have also found out that if I am able to start on this medicine, it takes at least four months until any improvement is seen. So, it will not be a quick fix. But we at least have a diagnosis…and I am so very thankful.
I lead a prayer team for the Mid-North IN Area in the Great Lakes region for Operation Christmas Child, a division of Samaritan's Purse. Our team selected a couple verses in Psalms to be ours for 2025 and they are as follows:
“Show me the right path, O Lord;
point out the road for me to follow.
Lead me by your truth and teach me,
for you are the God who saves me.
All day long I put my hope in you.”
Psalm 25:4-5
Little did I know when we “adopted” these verses at the beginning of the year, how important they would become in my life. I can’t tell you how many times I have asked the Lord to show us the right path. To lead us and teach us during these days because we know that He is our only hope. None of this is a surprise to Him and He has everything under control.
Are you also finding yourself in a time of waiting? I know it isn’t easy, and frustration can quickly set-in. But it is so important that we keep our eyes on the One who knows the right path. He knows what road we should journey on and so we need to wait for Him to teach us what we need to know.
HE is able to do the impossible. HE is able to work miracles when we think there is no hope. HE knows everything about our today, tomorrow and even the days and weeks that follow. So, we will put our trust and hope in the One who is able